It's Okay To Be Smart

  • About
  • Twitter
  • Science Links
  • Archive
  • RSS
  • Ask, I will answer (eventually)
banner

Scientific Fraud, Accountability and Prison: The Curious Saga of Chronic Fatigue Syndrome

As CFS patients continue to feel abandoned by the scientific mainstream, a look back at the saga of fraudulent research, lack of government oversight, and some stolen lab notebooks:

Two years ago, Judy Mikovits and the Whittemore-Peterson Institute for Neuro-Immune Disease were triumphant. Mikovits had just published a report inScience pointing to a retrovirus called XMRV as the possible cause of chronic fatigue syndrome, a little-understood illness characterized by debilitating flu-like symptoms that worsen with exertion. A wealthy woman whose daughter has the disease had started the institute in 2007 to study CFS, fibromyalgia, and Gulf War illness—and it wasn’t long before its researchers appeared to have shown they could succeed where two decades of government-led research had produced little.

Best of all for many CFS patients, the work seemed to offer undeniable proof of what they had long hoped to establish: that their disease has a physiological cause, not a psychological one.

But as of mid-November, the XMRV retrovirus research had been discredited and was suspected of being fraudulent; Mikovits sat clad in a blue jumpsuit in a California jail, accused of stealing lab notebooks and computer files from her former employer; the research program at the Whittemore-Peterson Institute was in disarray; and CFS patients were as confused as ever about the source of their illness and how to treat it.

(via Slate)

    • #science
    • #news
    • #chronic fatigue syndrome
    • #xmrv
  • 5 months ago
  • 29
  • Comments
  • Permalink
  • Share
    Tweet

29 Notes/ Hide

  1. apopyasy reblogged this from jtotheizzoe and added:
    In a strange way, I wish they hadn’t arrested her. This just validates all of the XMRV worshiper paranoia that the...
  2. metafollowerlambdaweaver reblogged this from jtotheizzoe
  3. tw-personal reblogged this from jtotheizzoe
  4. czaso-marnowacz liked this
  5. marineknowledge reblogged this from jtotheizzoe
  6. 18q22 reblogged this from jtotheizzoe
  7. molliferus liked this
  8. newblueprints liked this
  9. microjon reblogged this from jtotheizzoe
  10. sisyphus-redeemed liked this
  11. hercandidface liked this
  12. sowhenyoufeellikeitsallpretend liked this
  13. greatmindsofscience reblogged this from jtotheizzoe
  14. kaorunooto reblogged this from jtotheizzoe
  15. darylelockhart reblogged this from jtotheizzoe
  16. lumissne reblogged this from jtotheizzoe
  17. loverandnotafighter reblogged this from jtotheizzoe
  18. thenoobyorker liked this
  19. jtotheizzoe posted this

Recent comments

Blog comments powered by Disqus
← Previous • Next →

Portrait/Logo

About

"When we remember we are all mad, the mysteries disappear and life stands explained." - Mark Twain

There's a lot of science out there. I'm Joe, let me be your guide to the creative side of discovery, big science news, wondrous science visuals, analysis-izations and all the otherwise cool science-y things out there, with all the woo and BS filtered out.

One of Time Magazine's 30 Must-See Tumblrs - 2012

Featured in The Best Science Writing Online - 2012 (forthcoming from Farrar, Strauss and Giroux)

Elsewhere:
Contact me
Follow me on Twitter

Let's learn something together. Click the "Share" button to send a post to Twitter, Facebook, or Google+

I'm working to change the way science is communicated and restore it to its rightful place. This is an indie blog that takes many hours a week to publish. If you'd like to support It's Okay To Be Smart or just buy me a drink, please consider even a small donation. Together we CAN!

Want to see more great science-y stuff? Check out my LINKS page for some of my favorites.

The Curator's Code

Twitter

loading tweets…

  • RSS
  • Random
  • Archive
  • Ask, I will answer (eventually)
  • Mobile

Copyright 2010-2012 - It's Okay To Be Smart. Effector Theme by Carlo Franco.

Powered by Tumblr