Facebook saved my son’s life: My social network helped diagnose my son’s rare disease. Facebook transformed from my son’s inadvertent lifesaver to the most valuable tool in my arsenal: to keep family and friends abreast of his ever-mutating condition without having to steal time and emotional energy away from him; to pepper both Beth, the pediatrician, and Emily, the pediatric cardiologist, with an endless series of random questions with which I was too embarrassed to bother my own doctors; to feel connected—profoundly connected—to the human race while living, breathing, eating and sleeping in the isolating, fluorescent-lit bubble of a children’s hospital ward, where any potential humans I might have “friended” on our floor were too distraught over the fates of their own children to make any room in their hearts for strangers. (via Slate Magazine)
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Facebook saved my son’s life: My social network helped diagnose my son’s rare disease.

Facebook transformed from my son’s inadvertent lifesaver to the most valuable tool in my arsenal: to keep family and friends abreast of his ever-mutating condition without having to steal time and emotional energy away from him; to pepper both Beth, the pediatrician, and Emily, the pediatric cardiologist, with an endless series of random questions with which I was too embarrassed to bother my own doctors; to feel connected—profoundly connected—to the human race while living, breathing, eating and sleeping in the isolating, fluorescent-lit bubble of a children’s hospital ward, where any potential humans I might have “friended” on our floor were too distraught over the fates of their own children to make any room in their hearts for strangers.

(via Slate Magazine)

Source: Slate

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